SD Dojavi
OSMRTNICE
PRETPLATA
PREMIUM
stdClass Object ( [id] => 520178 [title] => Kujundžić odlučio: Ministarstvo neće platiti lijekove za bolesnu djecu, skupljat će se donacije [alias] => kujundzic-odlucio-ministarstvo-nece-platiti-lijekove-za-bolesnu-djecu-skupljat-ce-se-donacije [catid] => 142 [published] => 1 [introtext] => [fulltext] =>

Drzava osniva fond za posebno skupe lijekove u kojeg će novac moći uplatiti pravne i fizičke osobe i to za određenog pacijenta, odnosno za njegov lijek, rekao je Milan Kujundžić, ministar zdravstva, piše Dnevnik.hr.

Kujundžić je rekao da je osnivanje fonda već u proceduri te da bi to trebalo biti gotovo ovih dana. U taj bi fond mogao uplatiti svatko koliko želi, a dio novca potrebnog za nabavku lijeka uplatila bi i država. 

Fond se osniva zbog nabavke skupog inovativnog lijeka Spinraza kojim se zaustavlja progresija spinalne mišićne atrofije. 
  
Ana Alapić iz udruge Kolibrići koja okuplja roditelje vitalno ugrožene djece, nije zadovoljna onime što Kujundžić predlaže, piše Dnevnik.hr.

"Mislim da je dužnost i nas i svih drugih da se traži sustavno rješenje. Prema onome što smo dosad čuli, sve će opet ovisiti o našem angažmanu. Mogao nam je onda reći da novac svatko skuplja za svoje dijete humanitarnim akcijama", kaže Alapić.

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Drzava osniva fond za posebno skupe lijekove u kojeg će novac moći uplatiti pravne i fizičke osobe i to za određenog pacijenta, odnosno za njegov lijek, rekao je Milan Kujundžić, ministar zdravstva, piše Dnevnik.hr.

Kujundžić je rekao da je osnivanje fonda već u proceduri te da bi to trebalo biti gotovo ovih dana. U taj bi fond mogao uplatiti svatko koliko želi, a dio novca potrebnog za nabavku lijeka uplatila bi i država. 

Fond se osniva zbog nabavke skupog inovativnog lijeka Spinraza kojim se zaustavlja progresija spinalne mišićne atrofije. 
  
Ana Alapić iz udruge Kolibrići koja okuplja roditelje vitalno ugrožene djece, nije zadovoljna onime što Kujundžić predlaže, piše Dnevnik.hr.

"Mislim da je dužnost i nas i svih drugih da se traži sustavno rješenje. Prema onome što smo dosad čuli, sve će opet ovisiti o našem angažmanu. Mogao nam je onda reći da novac svatko skuplja za svoje dijete humanitarnim akcijama", kaže Alapić.

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StoryEditorOCM
HrvatskaFond za Spinrazu

Kujundžić odlučio: Ministarstvo neće platiti lijekove za bolesnu djecu, skupljat će se donacije

Piše PSD
4. prosinca 2017. - 15:06
PREMIUM

Drzava osniva fond za posebno skupe lijekove u kojeg će novac moći uplatiti pravne i fizičke osobe i to za određenog pacijenta, odnosno za njegov lijek, rekao je Milan Kujundžić, ministar zdravstva, piše Dnevnik.hr.

Kujundžić je rekao da je osnivanje fonda već u proceduri te da bi to trebalo biti gotovo ovih dana. U taj bi fond mogao uplatiti svatko koliko želi, a dio novca potrebnog za nabavku lijeka uplatila bi i država. 

Fond se osniva zbog nabavke skupog inovativnog lijeka Spinraza kojim se zaustavlja progresija spinalne mišićne atrofije. 
  
Ana Alapić iz udruge Kolibrići koja okuplja roditelje vitalno ugrožene djece, nije zadovoljna onime što Kujundžić predlaže, piše Dnevnik.hr.

"Mislim da je dužnost i nas i svih drugih da se traži sustavno rješenje. Prema onome š...

#MILAN KUJUNDŽIĆ#HUMANITARNA AKCIJA#SPINRAZA
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